United Cerebral Palsy (UCP) is dedicated to improving the lives of children and adults with cerebral palsy and other disabilities. The UCP Board of Trustees established the UCP Research Committee (URC) in 2020 as an important component of this endeavor.

The URC’s initiatives are designed to support clinical and translational research projects that use study designs that accelerate science into practice and support dissemination and implementation of evidence-based programs in and outside of the UCP affiliate network. 

The URC includes medical professionals, parents of individuals with disabilities, individuals with disabilities, clinician researchers, UCP affiliate leaders, and community-based advocates who believe that it is possible to improve the lives of children and adults with cerebral palsy. Many members represent the UCP affiliates whose work in our communities betters the lives of people with cerebral palsy every day.

Committee Co-Chairs

Michael Kruer MD is a pediatric movement disorders specialist neurologist and human geneticist. He serves as an Associate Professor of Child Health, Genetics, Neurology and Cellular & Molecular Medicine at the University of Arizona College of Medicine – Phoenix.  He also serves as director of the Pediatric Movement Disorders Program at the Barrow Neurological Institute, Phoenix Children’s Hospital. Michael’s lab is dedicated to understanding how genetic mutations lead to both common (cerebral palsy) and rare movement disorders in children and how genetics can serve as a springboard to improvements in both diagnosis and intervention. Michael’s clinical focus is on the care of children with cerebral palsy and related disorders, and he is a major proponent of trans-disciplinary collaboration in CP care. He received the Laura Dozer award from United Cerebral Palsy of Central Arizona in 2019 for promoting a life without limits for individuals with disabilities. His research has been supported by numerous public and private foundations, philanthropy, industry collaborations, and federal grants, and has appeared in a number of highly respected publications. The Kruer lab is currently collaborating with the Cerebral Palsy Research Network on an NIH-funded study of CP genomics whose goal is to better understand causes of cerebral palsy in order to bring personalized treatments to people with CP. Michael is a co-chair for the UCP Research Committee.

Valerie Pieraccini MS, OTR is the Vice President of Clinical Operations and Innovation at United Cerebral Palsy of Central Arizona where she has practiced for 30-years with her recent work dedicated to establishing a Motor Disorder Clinic for children with physical disabilities. Valerie is the co-chair for the UCP Nationals Research Committee and has served as an implementation leader for both the UCP Professional Learning Series Committee and the UCP Early Detection and Intervention of Cerebral Palsy Collaborative. Valerie is a fellow of the American Academy for Cerebral Palsy and Developmental Medicine. She is the lead author of Handprints: Home Programs for Hand Skills and has lectured widely on children’s hand skills, early intervention and cerebral palsy.

UCP Board Liaisons

Mark E. Gormley MD is a pediatric rehabilitation medicine physician at Gillette Children’s Specialty. He treats children and adolescents who have cerebral palsy, brain injuries, spinal cord injuries, neuromuscular disorders, and other conditions, with a special interest in spasticity management. He joined Gillette in 1993.

Dr. Gormley received his medical degree at the University of Louisville School of Medicine in Louisville, Ky.  He completed his residency in physical medicine and rehabilitation at Tufts Affiliated Hospitals in Boston and completed a fellowship in pediatric rehabilitation medicine and traumatic brain injury at the University of Michigan Medical Center.

Dr. Gormley is board-certified in pediatric physical medicine and rehabilitation. His professional memberships include the American Academy for Cerebral Palsy and Developmental Medicine, the American Academy of Physical Medicine and Rehabilitation, the Association of Academic Physiatrists and the Association of Children’s Prosthetic-Orthotic Clinics. He is on the UCP Board of Trustees and is the Board Liaison for the UCP Research Committee.

Dr. Ilene E. Wilkins   MPA, EdD is the President/CEO of UCP of Central Florida since 2002 and a member of the staff since 1995.   Originally hired as the Center Director, she has been instrumentally in growing the agency from providing services to 150 children to making a difference in the lives of thousands of children with and without disabilities and their families. Dr. Wilkins has served as a national and statewide leader in the field of disabilities including appointed by the Governor as the Chairman of the Florida Interagency Coordinating Council for Infants and Toddlers with Disabilities for Children’s Medical Services and head of various policy task forces.   She currently serves as a member of the Early Learning Coalition of Osceola County and Orange County and the Board of Directors for United Cerebral Palsy National.  Dr. Wilkins was also honored as the Central Florida Women of the Year by the Women’s Executive Council, CEO of the Year for the Orlando Business Journal and Katherine Maui Leadership Award by UCP National. She is on the UCP Board of Trustees and is the Board Liaison for the UCP Research Committee. Previously, Dr. Wilkins was the Executive Director of the Massachusetts Association for Professional Foster Care where she helped lead foster care and adoption policy and legislative changes locally and nationally.  Dr. Wilkins has Bachelors from New York University, a Masters in Public Administration from Suffolk University and received her doctorate in Exceptional Education from the University of Central Florida. Dr. Wilkins has six children, thirteen grandchildren and three dogs. Dr. Wilkins was also a foster parent for ten years, fostering over 150 children and teens.  She has a passion for traveling, roller coasters and reading.

Committee Members

Bhooma Aravamuthan MD, DPhil is an Assistant Professor, pediatric movement disorders specialist, and neuroscientist in the Division of Pediatric Neurology at the Washington University School of Medicine and the Cerebral Palsy Center at St. Louis Children’s Hospital. She completed her research doctorate at the University of Oxford in England, medical school and pediatrics residency at Washington University in St. Louis, and child neurology and movement disorders fellowships at Boston Children’s Hospital and Massachusetts General Hospital before returning to Wash U as faculty. She is vice-chair or co-chair-elect of the Scientific Program Committees for two national organizations: the Child Neurology Society (CNS) and the American Academy of Cerebral Palsy and Developmental Medicine. She is also Chair-elect of the American Academy of Neurology (AAN) Intellectual and Developmental Disabilities Section, co-founder and co-director of the CNS Cerebral Palsy Special Interest Group and co-leads the Cerebral Palsy Research Network Committees on Dystonia Research and Dystonia Quality Improvement. Her translational research on dystonia pathophysiology following neonatal brain injury is funded by the National Institute of Neurological Disorders and Stroke has received awards from multiple organizations including the 2022 AAN Jon Stolk Award in Movement Disorders Research. She is also married and a mom to three children – twin 4-year-old boys and an almost 2-year-old girl.

Dr. Jan Brunstrom-Hernandez is a pediatric neurologist, wife, mother and woman with cerebral palsy. Dr. Jan is owner and director of 1 CP Place PLLC, a clinic in Plano Texas devoted to helping children with cerebral palsy and similar motor disorders live their very best lives, using a comprehensive yet personalized approach, and combining neurological care with physical therapy and adaptive sports. Dr. Jan has more than 20 years of experience and has taken care of more than 2000 patients with cerebral palsy. She was formerly the founding director of the Pediatric Neurology Cerebral Palsy Center at Washington University School of Medicine and St. Louis Children’s Hospital from 1998 to 2014, and medical director of the Carol and Paul Hatfield Sports and Rehabilitation Program at St. Louis Children’s Hospital from 2003 to 2014, before she and her husband moved to the Dallas – Fort Worth metroplex to pursue a longstanding dream of building a freestanding cerebral palsy clinic and adaptive sports program for youth with cerebral palsy. Dr. Jan graduated from Medical College of Virginia at Virginia Commonwealth University in Richmond, Virginia and completed her pediatric neurology training at St. Louis Children’s Hospital at Washington University School of Medicine. Dr. Jan has first hand experience living with cerebral palsy- spastic diplegia- as a result of being born 3 months prematurely. Dr. Jan was a steering committee member of the international Multidisciplinary Prevention and Cure Team for Cerebral Palsy (IMPACT for CP), and is a member of the Scientific Advisory Committee for the Cerebral Palsy Foundation in New York.

Jill Chambers has been an advocate for children and adults with special needs and has spoken regionally, nationally, and internationally regarding her experiences as the mother of a son with a disability.  She has served on several boards of directors and committees including Kids Included Together, San Diego, United Cerebral Palsy of San Diego, and the Lawrence Family Jewish Community Center, all of which named her Volunteer of the Year. She served as Co-Chair of the Rady Children’s Hospital Family Advisory Committee where she was instrumental in designing their family centered care policy.

Joanne Dorn is the Executive Director/CEO of Cerebral Palsy Alberta (CPAA), a UCP Canadian affiliate. With over 25 years of experience in the disability field, Joanne has become a passionate advocate and leader.  Her dedication comes from personal experience, as her son was born with cerebral palsy in 1996. In 2007, after a 15-year career in the finance industry, Joanne joined the CPAA, devoting her time to focus on increasing accessibility and opportunities for individuals with disabilities. She has succeeded in various roles, overseeing the fund development of the organization and the social enterprise operations to the marketing and communications departments. Joanne was one of the co-founders of creating Cerebral Palsy Canada Network – a collaboration of Canadian CP organizations, research groups (kids brain health & Can Child) doctors, and researchers.

Diane L. Damiano PT, PhD, FAPTA is a Senior Investigator at the National Institutes of Health in Bethesda, Maryland and Chief of the Functional and Applied Biomechanics Section in the Rehabilitation Medicine Department. Her research focuses on the design and investigation of activity-based rehabilitation programs and development of robotic devices to promote optimal motor functioning and enhance muscle and neural plasticity in cerebral palsy. Her laboratory also has pioneered the use of mobile brain imaging technologies to investigate cortical activation during the emergence of motor skills in infants and children with and without cerebral palsy. She has published more than 125 scientific papers and is an Associate Editor of Neurorehabilitation and Neural Repair. She has served as President of the American Academy for Cerebral Palsy and Developmental Medicine (1^st physical therapist & 4^th woman in their 61-year history) and the Gait and Clinical Movement Analysis Society. In 2016, she was selected as a Catherine Worthingham Fellow of the American Physical Therapy Association, the highest honor in this profession. She recently received a NIH 2020 Director’s Award on Equity and Diversity for her lifelong research and service for children with disabilities and their families.

Karen Harpster PhD, OTR/L is a clinician scientist and occupational therapist and has been at Cincinnati Children’s Hospital since 2011.  Karen is also an assistant professor at the University of Cincinnati and a faculty member for the Leadership Education in neurodevelopmental and Related Disability (LEND) Program. She received her Master’s in Occupational therapy and Ph.D. in Rehabilitation Sciences both from The Ohio State University.  Karen evaluates and treats children with neurodevelopmental disorders with a large focus on infants and children with cerebral palsy and/or cerebral visual impairment.  Karen’s research focus is to develop research and clinical programs for prevention and early treatment for infants at high-risk for cerebral palsy and those with cerebral visual impairment.

Christopher Raffi Najarian, MD, MPH has cerebral palsy and has been in medical practice since 2013. He is a pediatric physiatrist and director of the Spasticity Clinic at Akron Children’s Hospital. A graduate of the University of Michigan in Ann Arbor and Wayne State University School of Medicine in Detroit, MI, he completed his residency in physical medicine and rehabilitation at MetroHealth Rehabilitation Institute of Ohio. He then completed a fellowship in pediatric rehabilitation medicine at Gillette Children’s Specialty Healthcare, Saint Paul, MN. Dr. Najarian has a special interest in cerebral palsy, spasticity management, brain injury, stroke, spinal cord injury, spina bifida, acute inpatient and outpatient rehabilitation and concussion management. He is certified by the American Board of Physical Medicine and Rehabilitation in Physical Medicine and Rehabilitation and Pediatric Rehabilitation Medicine. He’s also a member of the American Academy for Cerebral Palsy and Developmental Medicine and the American Academy of Physical Medicine and Rehabilitation.

Adam Rozumalski PhD is the Director of Operations for the James R. Gage Center for Gait and Motion Analysis at Gillette Children’s Specialty Healthcare. Adam received his undergraduate degree from Michigan Technological University and his Ph.D. from the University of Minnesota, both in Biomedical Engineering. He started as a graduate student doing research at Gillette 20 years ago and has been there ever since. His research interests include outcome assessment in cerebral palsy, clinical decision support and quality.

James Sulzer, PhD is Associate Professor of Physical Medicine and Rehabilitation and Biomedical Engineering at MetroHealth Medical Center and Case Western Reserve University in Cleveland, OH. He received his PhD at Northwestern University and the Rehabilitation Institute of Chicago (now Shirley Ryan AbilityLab) in Mechanical Engineering, creating and testing a robotic exoskeleton to assist walking in people after stroke. He then moved to Zurich, Switzerland after receiving the ETH Postdoctoral Fellowship to pioneer a method of neurofeedback using functional MRI to enable people to gain self-control of brain areas related to dopamine production. He then joined the faculty in Mechanical Engineering at the University of Texas at Austin where he continued these research lines until May 2020 when his 4 year old daughter suffered a severe traumatic brain injury.  Dr. Sulzer and his wife, Lindsay, a bioscientist herself, wrote an article in an academic journal on the experience and were later featured in The Atlantic. Now in Cleveland, their daughter is regularly treated at UCP of Greater Cleveland and Dr. Sulzer continues to explore rehabilitation innovations, now with a greater emphasis in pediatric rehabilitation.