We are proud to announce the 10 recipients of the inaugural Muscular Dystrophy Association College Scholarship program from across the country! Students were selected based on their commitment to community involvement, leadership potential, and personal growth and the scholarship funds will go towards their pursuit of higher education goals. Congratulations scholars! Thank you to our sponsors Certina and Numotion Foundation.
Muscular Dystrophy Association
Non-profit Organizations
Chicago, Illinois 23,984 followers
Faster breakthroughs, Stronger futures.
About us
If you’re seeking to start or advance your career with a purpose, Muscular Dystrophy Association is an employer that will enable you to thrive. The Muscular Dystrophy Association is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. Our mission is to empower the people we serve to live longer, more independent lives. #MDA #MuscularDystrophy #ALS #neuromuscuar. Apply now.
- Website
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http://www.mda.org
External link for Muscular Dystrophy Association
- Industry
- Non-profit Organizations
- Company size
- 51-200 employees
- Headquarters
- Chicago, Illinois
- Type
- Nonprofit
- Founded
- 1950
- Specialties
- health, healthcare services, ALS research, care, advocacy, muscular dystrophy research, care, advocacy, disability inclusion advocacy, MDA Summer Camp, MDA Care Center Network, MDA Advocacy, Neuromuscular diseases, research, care, advocacy, and community and professional medical education
Locations
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Primary
1016 W Jackson Blvd
1073
Chicago, Illinois 60607, US
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Employees at Muscular Dystrophy Association
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Ankur Ghia
Senior Partner - Global Leader in Digital Transformations and Cloud Strategy
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Autumn Hume
National Account Director, Healthcare Partnerships at Muscular Dystrophy Association
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Marshall ("Mark") Smith, NACD.DC
Senior Executive Leader | Operations | Board Governance | Corporate Finance | Strategic Planning | M&A | IPO | Restructuring | Turnaround
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Pamela Norfleet
Accounts Payable/Account Receivables Manager at Bank Administration Institute
Updates
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August is #SMAawarenessMonth, and all month long we’re shining a light on #SpinalMuscularAtrophy (#SMA), a #neuromuscular disease that impacts thousands of kids and adults every year. Throughout August, we’ll be sharing key facts about SMA to spread knowledge and awareness. Share and visit https://lnkd.in/ehhfmjtc to learn more about SMA.
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Muscular Dystrophy Association reposted this
📢 Abstract Submission Deadline Extended! 📢 Great news for muscular dystrophy researchers: The deadline for abstract submissions for the Breakthroughs in Muscular Dystrophy has been extended to August 16, 2024, at 11:59 PM ET. Join ASGCT and the Muscular Dystrophy Association (MDA) for this groundbreaking event: 🗓️ Date: November 19-20, 2024 📍 Location: The Westin Michigan Avenue Chicago This conference offers an unparalleled opportunity to: - Explore the latest advancements in gene and cell therapies for muscular dystrophy - Network with leading researchers and clinicians - Share your work with the scientific community Don't miss this chance to be part of shaping the future of muscular dystrophy treatment. Submit your abstract now - link below! 👇 #MuscularDystrophy #GeneTherapy #CellTherapy #ASGCT #MDA #ASGCTBreakthroughs24
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Join us Tuesday, August 27 and Wednesday, August 28 from 5 - 8pm on both dates for the MDA Next Steps Seminar for newly diagnosed #ALS patients and their families. Topics will include medical care, equipment and home modifications, mental wellness, financial planning, and more. Expert clinicians and members of the ALS community will provide insights, guidance and support in Q&A sessions. Register free today: https://lnkd.in/e4HTTWbg Thank you to our webinar supporters, Biogen, Mitsubishi Tanabe Pharma America, and Reinsurance Group of America, Incorporated.
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ADVOCATES TAKE ACTION: The Pediatric Rare Disease Priority Review Voucher encourages drug companies to develop treatments for rare pediatric diseases by offering a priority review voucher for future drug applications. This voucher speeds up the review process, helping bring treatments to market—and to patients—faster. However, this crucial FDA program will expire on September 30 unless Congress reauthorizes it. We need your help to urge Congress to extend this vital program. Take action with MDA by contacting your representative in just a few clicks: https://lnkd.in/eu-ZEZ3b
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ADVOCATES TAKE ACTION: The Accelerating Kids' Access to Care Act aims to streamline the process for children and families to access out-of-state care through state Medicaid programs, including neuromuscular care. Ensuring access to the best treatments without unnecessary delays and red tape is critical. Tell Congress to move this bill forward and take action with MDA here: https://lnkd.in/eiy89iA9
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The Muscular Dystrophy Association announced today an MDA Research Infrastructure Grant for $300,000 to Joshua Burns, PhD towards establishing a global certification standard for clinical evaluators focused on Charcot-Marie-Tooth disease (CMT), with the potential to revolutionize the field of muscle disease research. Through collaboration with his team of multinational co-investigators and collaborators, CMT Master Trainers and Patient Advocacy Groups worldwide, Dr. Burns aims to enhance trial readiness and scale-up trial capacity by building a network of reliable evaluators equipped with standardized clinical outcome measures via https://lnkd.in/esKa5xnG, a website established with an MDA Ideas Grant. "The establishment of a global certification standard for evaluating CMT represents a major advance in our ability to translate promising therapies from preclinical development to clinical trials. By ensuring the accuracy and reliability of clinical outcome measures, this initiative has the potential to expedite the translation of research into practice and improve outcomes for people living with CMT and related neuropathies," said Dr. Burns. #MDA #Research #CharcotMarieTooth #CMT #Neuromuscular Read more ⬇ ⬇ ⬇
Muscular Dystrophy Association Announces $300,000 Research Infrastructure Grant to Propel Advancements in Neuromuscular Disease Treatment through Global Clinical Trial Standards for Charcot-Marie-Tooth Disease | Muscular Dystrophy Association
mda.org
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Muscular Dystrophy Association reposted this
The Muscular Dystrophy Association’s #AccessibleAirTravel Campaign was announced as the PR Daily Content Marketing Award winner in the Purpose-Driven Category! PR Daily’s Content Marketing Awards celebrate the organizations, people, and teams that create compelling and engaging content for their audiences, advancing the field of content creation and leading to success for their organizations or clients. You can read more about our campaign here: https://lnkd.in/eZHPd-YC This campaign played in mobilizing advocates and allies to push for greater inclusion for people with #disabilities, culminating in the Federal Aviation Administration reauthorization being signed into law. A heartfelt thank you to all the advocates who took part in this campaign, especially Madison Lawson and Mindy Henderson, who shared their #AirTravel experiences in real time and went viral on social media, contributing to a more accessible world. Special thanks to the leadership of Paul Melmeyer and the entire MDA advocacy team for their absolute professionalism, expertise and dedication to making the world more accessible to people with neuromuscular and other disabilities.
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The Muscular Dystrophy Association’s #AccessibleAirTravel Campaign was announced as the PR Daily Content Marketing Award winner in the Purpose-Driven Category! PR Daily’s Content Marketing Awards celebrate the organizations, people, and teams that create compelling and engaging content for their audiences, advancing the field of content creation and leading to success for their organizations or clients. You can read more about our campaign here: https://lnkd.in/eZHPd-YC This campaign played in mobilizing advocates and allies to push for greater inclusion for people with #disabilities, culminating in the Federal Aviation Administration reauthorization being signed into law. A heartfelt thank you to all the advocates who took part in this campaign, especially Madison Lawson and Mindy Henderson, who shared their #AirTravel experiences in real time and went viral on social media, contributing to a more accessible world. Special thanks to the leadership of Paul Melmeyer and the entire MDA advocacy team for their absolute professionalism, expertise and dedication to making the world more accessible to people with neuromuscular and other disabilities.
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The 2024 MDA Nashville Muscle Team Gala will be held September 17 at Marathon Music Works honoring Megan DeJarnett, author, speaker, disability #DEI educator, inclusion advocate, and influencer who lives with #SpinalMuscularAtrophy. The 8th annual event brings the MDA community together in support of our shared mission to propel research forward, advance care, and advocate for our community. Co-hosts Danielle Breezy, Chief Meteorologist at WKRN News 2, and Joe Breezy at WKRN News and nationally syndicated radio host of Mix 92.9 will emcee the event. Tickets, sponsorships, and donations may be made here: https://lnkd.in/eHVc-xWx Thank you to our presenting sponsor, Numotion, and our champion sponsors, CITGO and National Seating & Mobility. Learn more: https://lnkd.in/eirAWq59
Muscular Dystrophy Association's 8th Annual Nashville Muscle Team Gala Honors Local Nashville MDA Ambassador Megan DeJarnett on September 17 at 6pm | Muscular Dystrophy Association
mda.org