PAN Foundation

Last year, we had another impactful year of helping people access their treatment, championing healthcare policies that put patients first, and equipping people with educational resources to help navigate complex healthcare topics. Read more in our annual report: https://bit.ly/4fAGPYI Thanks to your support, in 2023 we: ✅ Provided more than $255 million in direct financial support to 110,520 people across all 50 states and U.S. territories ✅ Hosted our inaugural in-person Advocacy Action Day, convening 40+ advocates from 16 states and one U.S. territory in Washington, DC ✅ Expanded our educational footprint by providing resources about the Medicare Part D reforms, copay accumulators, alternative funding programs, health equity, and more Together, we can continue to save lives and champion access to care. Thank you for being a part of our community!

HR 2630/S. 652., the Safe Step Act, will help patients access the best treatment for them, safely and efficiently. We need your help asking Congress to support this critical piece of legislation and put patients first. Easily email your representatives for their support here: https://ow.ly/Sk2x50SQhCh

Hello, New York! 🗽 Our team is excited to join the #NMANYC2024 annual convention and scientific assembly! Stop by our booth (T15) before tomorrow to meet our team and say hello 👋

Did you know most adults living with chronic illnesses are open to participating in clinical trials? The biggest barrier to participation is lack of information 📋 Our new clinical trials initiative, launching in fall 2024, will provide patients with the information, resources, and support they need to navigate the complex world of clinical trials. Read more about the initiative here ➡️ https://ow.ly/9ZJp50SQhiB

August is Spinal Muscular Atrophy (SMA) awareness month! SMA is a rare disease that impacts the nervous system by progressively destroying motor neurons that control essential muscle activity. Do you have a patient or know someone living with SMA who needs help paying their out-of-pocket prescription costs? Our SMA fund is currently open, and eligible patients can receive up to $3,800 per year in financial assistance. Learn more at: https://ow.ly/ovbg50SJCNy

Did you know that we provide financial assistance to patients living with more than 25 rare diseases? Our Chief Mission Officer, Amy Niles, dives into our rare disease funds and more in a recent blog post for Global Genes. Read more here: https://ow.ly/16lz50SJCiR

📢 LAST CHANCE TO VOTE! Please take 30 seconds to vote for PAN in the final round of the Charity Navigator Community Choice Awards by 11:59 pm ET tonight: https://bit.ly/46eC6rp We could not have made it this far without your continued support! 💜

For Karen Lewis, the first half of 2021 was a blur of phone calls, letters, and documentation as she and her neurologist’s office tried to get her insurer to approve a drug that would be safe for her to take. Time after time, the request was denied. Time after time, Karen appealed the decision. She had encountered a step therapy, or “fail first,” policy, which requires patients to try and fail an insurer-preferred medication before covering the medication that was originally prescribed. This harmful practice can lead to delays in care, severe side effects, and irreversible disease progression. Read more about Karen’s story and urge Congress to support the Safe Step Act today: https://ow.ly/6iSi50SJB7g

From Georgia to New York, our team is excited to attend these upcoming conferences:   🍑 July 31 – August 3: National Association of Hispanic Nurses (NAHN) Annual Conference in Atlanta, GA. Come say hello to our team at booth 32 👋  🗽 August 3-7: National Medical Association Convention & Scientific Assembly in New York, New York. Swing by T15 to meet our team and learn more about PAN!  

📢 We’re thrilled to announce our new disease fund for Myelodysplastic Syndromes (MDS)! MDS are conditions that can occur when the blood-forming cells in the bone marrow become abnormal and are considered a type of cancer. Eligible Medicare patients can receive up to $6,800 in financial assistance for their covered medications! Learn more about our new MDS fund here: https://lnkd.in/eud_Vxar