About
Articles by Austin
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Christian Campbell-Carrigg wins the Young Adult Caregiver of the Year Award!
Christian Campbell-Carrigg wins the Young Adult Caregiver of the Year Award!
By Austin Carrigg
Contributions
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Here's how you can effectively drive innovation as a nonprofit leader: key skills and qualities to master.
I’ve found that encouraging innovation within our nonprofit means something very different than it does for other organizations. We believe that all team members need to feel like they are part of the whole team and they need to see how the work they are doing helps the nonprofit fulfill its mission. It has also been extremely important to encourage all members to bring their ideas to the table regardless of what their job position is. Sometimes ideas and innovation can come from the people you least expect them to.
Activity
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This should be shocking but sadly it's not. As a family, Joshua Carrigg, Christian Campbell-Carrigg, Melanie, and I have worked tirelessly to make…
This should be shocking but sadly it's not. As a family, Joshua Carrigg, Christian Campbell-Carrigg, Melanie, and I have worked tirelessly to make…
Shared by Austin Carrigg
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I’m so excited to announce that I’ll be taking the stage with Military Influencer in Atlanta this October. I'll be talking about #QualityOfLife…
I’m so excited to announce that I’ll be taking the stage with Military Influencer in Atlanta this October. I'll be talking about #QualityOfLife…
Shared by Austin Carrigg
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I've been counting down the days since last year, Christian Campbell-Carrigg and I had such a great time! I'm honored to be able to be a speaker at…
I've been counting down the days since last year, Christian Campbell-Carrigg and I had such a great time! I'm honored to be able to be a speaker at…
Shared by Austin Carrigg
Experience & Education
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Exceptional Families of the Military
View Austin’s full experience
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Volunteer Experience
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2/506 FRG Leader
US Army
- 8 months
i18n_veterans
Supports the commander's family readiness goals
*Provides overall leadership of the FRG
*Recruits other volunteers to serve on FRG committees
*Delegates FRG responsibilities to selected volunteers as committee chairpersons, or presides over their elections
*Serves as a member of the battalion-level steering committee
*Identifies needs or unique problems of unit families
*Acts as unit FRG spokesperson for communicating family members' concerns and ideas to the unit commander…Supports the commander's family readiness goals
*Provides overall leadership of the FRG
*Recruits other volunteers to serve on FRG committees
*Delegates FRG responsibilities to selected volunteers as committee chairpersons, or presides over their elections
*Serves as a member of the battalion-level steering committee
*Identifies needs or unique problems of unit families
*Acts as unit FRG spokesperson for communicating family members' concerns and ideas to the unit commander and, if needed, the battalion-level FRG leader
*Providing information and referrals to families who need assistance with the appropriate installation/community resources
*Assisting in establishing and updating FRG rosters
*Providing assistance with the preparation of pre-deployment, sustainment, and reunion activities
*Assisting with FRG newsletters and websites -
FRG Leader 2/506
US Army
- 7 months
i18n_veterans
Supports the commander's family readiness goals
*Provides overall leadership of the FRG
*Recruits other volunteers to serve on FRG committees
*Delegates FRG responsibilities to selected volunteers as committee chairpersons, or presides over their elections
*Serves as a member of the battalion-level steering committee
*Identifies needs or unique problems of unit families
*Acts as unit FRG spokesperson for communicating family members' concerns and ideas to the unit commander…Supports the commander's family readiness goals
*Provides overall leadership of the FRG
*Recruits other volunteers to serve on FRG committees
*Delegates FRG responsibilities to selected volunteers as committee chairpersons, or presides over their elections
*Serves as a member of the battalion-level steering committee
*Identifies needs or unique problems of unit families
*Acts as unit FRG spokesperson for communicating family members' concerns and ideas to the unit commander and, if needed, the battalion-level FRG leader
*Providing information and referrals to families who need assistance to the appropriate installation/community resources
*Assisting in establishing and updating FRG rosters
*Providing assistance with the preparation of pre-deployment, sustainment and reunion activities
*Assisting with FRG newsletters and websites
Publications
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Ketotic hypoglycemia in patients with Down syndrome: an example of extreme citizen science in biomedicine
Proceeding of Science
Ketotic hypoglycemia (KH) is an often-overlooked disorder with low blood sugar and accelerated fat burn, sometimes in association with a syndromic disease. The Facebook support group for members of the patient organization Ketotic Hypoglycemia International became the platform where a mom of a child with a hitherto unseen combination of Down syndrome and KH identified more families with tories similar to her own. This resulted in a citizens-initiated and citizens-driven project, where…
Ketotic hypoglycemia (KH) is an often-overlooked disorder with low blood sugar and accelerated fat burn, sometimes in association with a syndromic disease. The Facebook support group for members of the patient organization Ketotic Hypoglycemia International became the platform where a mom of a child with a hitherto unseen combination of Down syndrome and KH identified more families with tories similar to her own. This resulted in a citizens-initiated and citizens-driven project, where scientific experts from the organization’s Scientific Advisory Board were invited in to participate. It was preliminarily estimated that 7% of children with Down syndrome have KH. The first scientific paper on the topic has been published, an animation video of the findings was produced, and the first pilot project is about to start, investigating in detail the prevalence of KH in a cohort of 70 children with Down syndrome in Denmark. This project is an example of parent-organization-driven research, where novel observations may arise, not firstly caught by the health care system. Acknowledgment of such observations by presentation and subsequent further research in co-production between parents in a patient organization and health care professionals is an example of co-produced health research or extreme citizen science in biomedicine.
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Ketotic hypoglycemia in patients with Down syndrome
JIMD Reports
Background
Ketotic hypoglycemia (KH) without an identifiable underlying metabolic or hormonal disease is historically named idiopathic KH. The prevalence is unknown, but idiopathic KH is considered the most frequent cause of hypoglycemia beyond the neonatal period. KH in Down syndrome (DS) has not been reported.
Results
Survey data on 139 DS patients were obtained. After validation, 10 patients (7.2%) had reported episodes of documented hypoglycemia, ketosis, and/or symptoms…Background
Ketotic hypoglycemia (KH) without an identifiable underlying metabolic or hormonal disease is historically named idiopathic KH. The prevalence is unknown, but idiopathic KH is considered the most frequent cause of hypoglycemia beyond the neonatal period. KH in Down syndrome (DS) has not been reported.
Results
Survey data on 139 DS patients were obtained. After validation, 10 patients (7.2%) had reported episodes of documented hypoglycemia, ketosis, and/or symptoms compatible with KH beyond the neonatal period. Glucose concentrations ranged 1.2-2.9 mmol/L; betahydroxybutyrate was up to 5.5 mmol/L during hypoglycemia. One girl had trisomy 21 with no response to i.m. glucagon also had a heterozygous Xp22.23 deletion including GYG2, which protein, glycogenin 2, is a substrate for glycogen synthase. Treatment with extended release cornstarch was effective.
Results
Survey data on 139 DS patients were obtained. After validation, 10 patients (7.2%) had reported episodes of documented hypoglycemia, ketosis, and/or symptoms compatible with KH beyond the neonatal period. Glucose concentrations ranged 1.2-2.9 mmol/L; betahydroxybutyrate was up to 5.5 mmol/L during hypoglycemia. One girl had trisomy 21 with no response to i.m. glucagon also had a heterozygous Xp22.23 deletion including GYG2, which protein, glycogenin 2, is a substrate for glycogen synthase. Treatment with extended release cornstarch was effective.
Conclusion
This is the first demonstration of a possible high prevalence of KH in DS. Even though this finding needs to be confirmed in other research settings, identification of KH in DS could have a dramatic impact, as simple treatments with cornstarch, protein and frequent meals may prevent KH attacks and, analogous to other conditions with KH, improve growth, stamina and prevent overeating and obesity. GYG2 deletion may contribute to KH in DS, resembling glycogen storage disease type 0.Other authors -
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Towards enhanced understanding of idiopathic ketotic hypoglycemia
Orphanet Journal of Rare Diseases
Idiopathic Ketotic hypoglycemia (IKH) is a diagnosis of exclusion. Although considered as the most frequent cause of hypoglycemia in childhood, little progress has been made to advance the understanding of IKH since the medical term was coined in 1964. We aimed to review the literature on ketotic hypoglycemia (KH) and introduce a novel patient organization, Ketotic Hypoglycemia International (KHI).
Other authors -
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