I'm just home from Babble Frost 2024, and we were joined by Rachel Sharp MCIOF (Cert), fundraising manager for My Name'5 Doddie, with Babble now a Corporate Partner.
Rachel enlightened us as we learned some truly harrowing stats, and watched a video filmed with Doddie about a month or so before he passed - I could feel the tears forming, and I know most of the room was the same. I heard the mutters of "bloody hell", "brutal", and the long expell of air as people processed what we'd read, heard, and watched...here's some highlights.
1 in 300 people will be handed the death sentence that is Motor Neuron Disease.
Most of those people will have waited around a year for diagnosis.
The average life expectancy once diagnosed is a mere 12-18 months. With many dying within just 3 months when the disease is particularly aggressive.
5000 people in the UK right now are living with MND. This might seem low based on a 1 in 300 figure. That's because of how quickly it will kill a person.
It is a literal death sentence...right now.
There has not been a new drug to help treat MND in nearly 40yrs.
That drug *might* extend life expectancy by around 3 months.
Treatment itself has not substantially changed in 20yrs.
It is almost guarantee that you personally know someone who has been killed by MND.
It IS an ABSOLUTE guarantee that you know someone who knows someone killed by MND (for my connections...you know me, and it killed a childhood neighbour of mine). I also know at least three other victims at just 1 degree of separation).
Again...literal death sentence.
As a Corporate Partner to My Name'5 Doddie, Babble have committed to raising £250,000! So I will be doing something later this year to help raise funds - I've always fancied a charity boxing match...if you know how to make that happen and can help me -let me know.
However, right now, my brother is taking part in Doddie Aid right - and is trying to raise £500.
Can you help? Can you share?
Doddie's final words in his video to us... "MND is not uncurable. It's just underfunded"
https://lnkd.in/eRePrhTz
#myname5doddie #doddieaid #mnd
#babble #babblefrost
I teach B2B founders how to close more enterprise deals faster using The Launch Code 🚀 Generated $2 billion in B2B revenue in my 30-year career📣 Speak about B2B sales & entrepreneurship
4wWow, you guys are amazing. ✨